Guidelines for Care, Second Edition

Edited by Stephanie Porter, M.S.N., R.N., Marilynn Haynie, M.D., Timaree Bierle, B.S.N., R.N., Terry Heintz Caldwell, Ed.D., & Judith S. Palfrey, M.D.

Containing detailed daily care guidelines and emergency-response techniques, this long-awaited second edition includes information on working with a range of students, including those who have HIV infection, rely on ventilators, utilize tube feeding, or require catheterization.

Reviewed by experts across the country to ensure accuracy and usability, this hands-on reference helps school nurses, teachers, parents, school administrators, and health aides provide crucial care and support. Education-specific chapters cover every aspect of planning for inclusive classrooms, including information on personnel training, entrance planning and transition, legal requirements, and transportation issues.

Sensitively written and extensively illustrated, this comprehensive resource also contains forms and checklists for organized record keeping and program planning.

Section I: Children and Youth Assisted by Medical Technology in Educational Settings

1. Students Who Require Medical Technology in School
   Terry Heintz Caldwell, Barbara P. Sirvis, Judy Still, Michael Still, Nadine Schwab, Julie Jones, Betsy Anderson, Ronald Blanchard, and Susanne Appel
   
   
   • Medical Technologies Used by Students in School
   • Meeting the Students' Educational Needs
   • Meeting Social and Emotional Needs in the School Setting
   • The School Experience for Students Who Are Assisted by Medical Technology and for Their Classmates
   • The Experience of School Personnel
   • Summary
   • References
   • Suggested Readings
     
     
2. Legal Issues in the Education of Students with Special Health Care Needs
   Janice Rutledge Janz, Henry A. Beyer, Nadine Schwab, Betsy Anderson, Terry Heintz Caldwell, and Jacqueline Harrison
   
   
   • The Individuals with Disabilities Education Act (IDEA) of 1990
   • The Rehabilitation Act of 1973 (PL 93-112), Section 504
   • The Americans with Disabilities Act (ADA) of 1990 (PL 101-336)
   • The Family's Role in Ensuring the Rights of the Child
   • Other Laws, Regulations, and Standards
   • Summary
   • References
   • Suggested Readings
   • Resources
     
     
3. Entrance and Planning Process for Students with Special Health Care Needs
   Terry Heintz Caldwell, Janice Rutledge Janz, Debra S. Alcouloumre, Stephanie Porter, Marilynn Haynie, Judith S. Palfrey, Timaree Bierle, Thomas Silva, Judy Still, Barbara P. Sirvis, Nadine Schwab, and Arlene Swan Mahony
   
   
   • Early Identification and Notification
   • Identification of the Student's Team for Assessment and Planning
   • The Tasks Involved in Assessment and Planning
   • Development of an Individualized Health Care Plan
   • Training
   • Implementation, Monitoring, and Evaluation
   • Summary
   • References
   • Suggested Readings
   • Manuals
     
     
4. Transportation of Students with Special Health Care Needs
   Joan E. Daley and Susan Murray Larsen
   
   
   • Applicable Laws and Regulations
   • Seating
   • Personnel and Training
   • Special Considerations
   • References
   • Suggested Readings
   • Guide to Transportation Safety Products for Children with Special Needs
   • Manufacturers
     
     
5. Special Health Care Needs: Universal Precautions and Infection Control in a School Setting
   Richard G. Giardina and Christine E. Psota
   
   
   • Universal Precautions
     Hand Washing
     Personal Protective Equipment
     Disposal of Waste
     Cleanup of Spills
     Laundry
     Accidental Exposure
     Pregnant Women
   • References
   • Suggested Readings
   • Resources
     
     
   • Alert: Latex Allergy
     Ellen Meeropol
     
     
   • LATEX in the Home and Community
   • LATEX in the Hospital Environment
   • References
   • Suggested Readings
     
     
   • Human Immunodeficiency Virus and Acquired Immunodeficiency Syndrome
     Andrea Rubin Hale
     
     
   • Spectrum of Disease
   • Transmissibility
   • Policy and Practice Changes: Trends for the Future
   • School Attendance
   • Health Care Plan Considerations
   • When a Child is Enrolled in a Clinical Trial
   • Summary
   • References
   • Suggested Readings
     
     
6. Useful Documents
   • Guidelines for Analysis of Sociocultural Factors in Health
   • Bloch's Ethnic/Cultural Assessment Guide
   • Individualized Health Care Plan
   • Checklist of Items for Consideration in Developing Individualized Education Plans (IEP) for Students with Special Health Needs
   • General Classroom Inclusion Checklist
   • Additional Considerations for Educational Planning and Programs

Section II: Guidelines for Care

Tube Feeding

• Gastrointestinal System
• Gastrostomy Tube
• Skin-Level Gastrostomy Device
  Marguerite David
• Nasogastric Tube
• Jejunostomy Tube
  Marguerite David
• Suggested Readings
  
  

Intravenous Lines

• Circulatory System
• Central Venous Catheter
  Elizabeth Hughson and Dale O'Hayer
• Peritoneal Dialysis
  Elizabeth Hughson
• Suggested Readings
  
  

Dialysis

• Urinary System
• Hemodialysis
  Elizabeth Hughson and Dale O'Hayer
• Peritoneal Dialysis
  Elizabeth Hughson
• Suggested Readings




Clean Intermittent Catheterization

• Urinary System
• Male
  Mary Jo Dunleavy and Ann Tierney
• Female
  Mary Jo Dunleavy and Ann Tierney
• Suggested Readings




Ostomy Care

• Gastrointestinal System
• Ostomies for Elimination
  Denise P. Burns and Sandra Quigley
• Colostomy
  Denise P. Burns and Sandra Quigley
• Ileostomy
  Denise P. Burns and Sandra Quigley
• Urostomy
  Rosemary H. Grant
• Suggested Readings




Respiratory Care

• Respiratory System
  Laura Ibsen
• Disorders Affecting Respiratory System
  Cornelia Mercurio and Lauren Perlman
• Supplemental Oxygen Use
  Cornelia Mercurio and Lauren Perlman
• Tracheostomy
  Cornelia Mercurio and Lauren Perlman
• Tracheal Suctioning
  Cornelia Mercurio and Lauren Perlman
• Tracheostomy Tube Changes
  Cornelia Mercurio and Lauren Perlman
• Manual Resuscitation Bag
  Cornelia Mercurio and Laren Perlman
• Nose and Mouth Suctioning
  Cornelia Mercurio and Laren Perlman
• Nebulizer Treatments
  Lois Doerr
• Use of Mechanical Ventilators
  Cornelia Mercurio and Laren Perlman
• Suggested Readings




Skills Checklists

• Gastrostomy Feeding Bolus Method
• Gastrostomy Feeding Slow Drip or Continuous Method
• Skin-Level Gastrostomy Feeding--Bolus Method
• Skin-Level Gastrostomy Feeding--Slow Drip or Continuous Method
• Nasogastric Tube Feeding--Bolus Method
• Nasogastric Tube Feeding--Slow Drip or Continuous Feeding
• Jejunostomy Feeding--Continuous Method Feeding by Pump
• Central Venous Catheter Dressing Change
• Heparin Flush
• Clean Intermittent Catheterization--Male
• Clean Intermittent Catheterization-Female
• Colostomy Pouch Change
• Ileostomy Pouch Change
• Urostomy Ouch Change
• Continent Urostomy/Vesicostomy Catheterization
• Oxygen Cylinder
• Oxygen Liquid System
• Oxygen Concentrator
• Go Bag Supplies
• Tracheostomy Tube Care
• Tracheal Suctioning--Sterile Technique
• Tracheostomy Suctioning--Bulb Technique
• Manual Resuscitator Bag with Tracheostomy
• Respiratory Emergencies--Accidental Removal of the Tracheostomy Tube
• Respiratory Emergencies-Blocked Tracheostomy Tube
• Respiratory Emergencies-Aspiration
• Suctioning-Nose and Mouth
• Suctioning-Nose and Mouth with Bulb Syringe
• Nebulizer Treatment
• Ventilator Machine and Circuit
• Ventilator Troubleshooting Alarms

Glossary