Learn More About This Book:
Table of Contents
Related Titles:
Medical Care for Children and Adults with Developmental Disabilities, Second Edition
Children with Disabilities, Sixth Edition
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New!
Optimizing Care for Young Children with Special Health Care Needs
Knowledge and Strategies for Navigating the System
Edited by Elisa J. Sobo, Ph.D., & Paul S. Kurtin, M.D.
How can primary care physicians and other health care providers help families get the best care and services for young children with special health care needs (CSHCN)? They’ll find the answers in this concise resource, a one-of-a-kind field guide to all the critical issues, policies, and practices affecting medical care for CSHCN from birth to age 5.
Blending knowledge gained from the cutting-edge research of nationally prominent scholars with the real-world experiences of front-line authorities such as parents, primary care physicians, and specialists, this book helps readers
- create efficient and consistent medical homes that are truly responsive to the needs of children and families
- build productive advocacy partnerships to bring about necessary changes in policy and programs
- understand what parents experience as they learn to navigate the complex health care system, adapt to family life with their child, and pinpoint the socio-cultural biases
they may have to contend with
- grasp the complexities of insurance, financing, and other resource-related programs for CSHCN
Ideal for anyone who directly assists or works with families of CSHCN, this book will help providers effectively manage the health care system and optimize care for children with any kind of special health care needs.
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ORDERING INFO
ISBN 978-1-55766-854-7
Paperback
328 pages / 6 x 9
2007 / $39.95
Stock# 68547
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Table of Contents
About the Editors
About the Contributors
Foreword, by Merle G. McPherson
Preface
Prologue
Jill and Hank Chambers
Section I: Setting the Stage for Change
- Children with Special Health Care Needs: Evolving Definitions, Evolving Estimates
Ruth E.K. Stein
- Policies and Programs Relevant to Children with Special Health Care Needs
Karen Kuhlthau, Sheila Bloom, Monica Marthell, and Hodon Mohamed
- Matters of Finance: How Do We Pay for the Care of Children with Special Health Care Needs?
John M. Neff
Section II: The Parent Experience
- Incorporating Children with Disabilities into Family Life
Gail Landsman and Marcia Van Riper
- Learning to Care and Advocate for Children with Special Health Care Needs: A Family Perspective
Nora Wells
Section III: The Provider Experience
- Creating a Medical Home for Children with Special Health Care Needs
Charles J. Homer and W. Carl Cooley
- Primary Care Practice and Children with Special Health Care Needs: Actual and Ideal
Thomas K. McInerny
- Case Management of Children with Special Health Care Needs: The Pediatrician Perspective
Robert M. Sheets and Paul S. Kurtin
- Disrupting Dreams, Making Discoveries, and Deciphering Systems of Care: The Long-Range View of the Developmental Specialist
Laurel K. Leslie and Kristin Gist
Section IV: Present Strategies, Future Directions
- Mastering the Health Care System for Children with Special Health Care Needs
Elisa J. Sobo
- Accessing Quality Care for Children with Special Health Care Needs: The Future of Policy and Research
Lisa A. Simpson and Denise Dougherty
Index
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