Excerpted from the appendix Fetal Alcohol Syndrome: A Guide for Families and Communities, by Ann Streissguth, Ph.D.

Copyright © 1997 by Paul H. Brookes Publishing Co. All rights reserved. No part of this excerpt may be reproduced or reprinted without permission in writing from the publisher.

Videos/Slides

Alcohol, Pregnancy, and the Fetal Alcohol Syndrome
Streissguth, A.P., & Little, R.E. (1994). Alcohol, pregnancy, and the fetal alcohol syndrome (slide lecture series, 2nd ed.). Hanover, NH: Dartmouth Medical School, Project Cork. Teaching unit with 79 slides and 62 pages of accompanying text that gives comprehensive overview of the effects of maternal drinking on the fetal development of the central nervous system; also explains facial and behavioral characteristics of individuals with FAS/FAE and outlines current research and public health issues. (Available by calling 1-800-432-8433.)

David with FAS
Kanata Production & National Film Board of Canada and CBC. (1996). David with FAS [Film]. Princeton, NJ: Films for the Humanities and Sciences. 45-minute video about David Vandenbrink, a 21-year-old man with FAS whose condition went undiagnosed for 18 years. (Available from Films for the Humanities and Sciences, Post Office Box 2053, Princeton, NJ 08543-2053, or call 1-800-257-5126.)

The Fabulous FAS Quiz Show
March of Dimes Foundation, Washington State Department of Health, and State Superintendent of Public Instruction. (1994). The Fabulous FAS quiz show. Seattle: March of Dimes Foundation, Western Washington Chapter. Emmy Award-winning video and teacher's guide. Targets middle school students to help them make the right choices regarding alcohol and reproduction and promotes the prevention of babies born with FAS birth defects. (Available by calling 206-624-1373.)

The Honour of All
Alkali Lake Indian Band. (1986). The honour of all [video recording]. Williams Lake, British Columbia, Canada: Micro-Video Productions. Documents the journey of a small Candian Indian Reserve as it moves from an extremely high alcoholism rate to establishing nearly 100% sobriety. (Available from the North American Public Broadcasting Consortium, Post Office Box 8311, Lincoln, NE 68501.)

What's Wrong with My Child
Wenner, K. (Executive Producer). (1992, November 27). What's wrong with my child? 20/20. New York: American Broadcasting Company. Features clips of writer Michael Dorris and his adoptive son with FAS, also interviews other children with FAS and experts on the syndrome. (Available by calling 1-800-CALL-ABC.)

Organizations

Access to Respite Care and Help (ARCH)
ARCH National Resource Center, 800 Eastowne Drive, Suite 105, Chapel Hill, NC 27514 (1-800-473-1727). Provides support services to service providers and families of children with disabilities through training, technical assistance, evaluation, and research.

Alcohol and Drug 24-Hour Help Line
(1-800-562-1240). Sponsored by the Washington State Substance Abuse Coalition (1-800-662-9111). (Look inside the front of your telephone book for local alcohol/drug help lines.)

American Association of University Affiliated Programs
8630 Fenton Street, Suite 410, Silver Spring, MD 20910 (301-588-8252). Provides listing of federally established programs for service, research, and training in the field of developmental disabilities. Includes 60 university affiliated programs and 14 mental retardation/developmental disabilities research centers, which can provide information on state resources for people of all ages who are suspected of having FAS/FAE.

American Montessori Society (AMS)
281 Park Avenue South, 6th floor, New York, NY 10010 (212-358-1250). Nonprofit organization dedicated to stimulating the use of the Monetssori teaching approach in private and public schools. Montessori's holistic curriculum promotes the development of social skills, emotional growth, and physical coordination, as well as cognitive preparation.

The Arc of the United States
500 East Border Street, S-300, Arlington, TX 76010 (817-261-6003). Private, nonprofit organization devoted to improving the lives of people with mental retardation and fostering research and education for the prevention of mental retardation in babies and young children; local chapters offer services as a Family Handbook on Future Planning, FAS campaign kits, brochures, booklets, posters and public service announcements, and action plans for legislative advocacy.

Association of Waldorf Schools of North America (AWSNA)
3911 Bannister Road, Four Oaks, CA 95628 (916-962-0927). Supports and encourages Waldorf schools, which take a holistic educational approach that seeks to address the full and harmonious development of children's spiritual, emotional, and physical capabilities; provides information for those interested in Waldorf Schools.

Center for Science in the Public Interest (CSPI)
1875 Connecticut Avenue, NW, Suite 300, Washington DC 20009 (202-332-9110). Nonprofit education and advocacy organization that focuses on reducing damage caused by alcohol; seeks to promote health and well-being by educating the public about nutrition and alcohol; represents citizens' interests before legislative, regulatory, and judicial bodies.

Family Empowerment Network (FEN)
University of Wisconsin, 610 Langdon Street, Madison, WI 53703 (1-800-462-5254). National, nonprofit organization that exists to empower families affected by FAS and other drug-related birth defects through education and support; also publishes newsletter FenPen.

FAS/FAE Information Service, Canadian Centre on Substance Abuse
75 Albert Street, Suite 300, Ottawa, Ontario, Canada K1P 5E7 (1-800-559-4514). Bilingual information and links to support groups, prevention projects, resource centers, and experts on FAS/FAE.

FAS/FAE Support Network of British Columbia
14326 Currie Drive, Surrey, British Columbia, Canada V3R BA4 (604-589-1854). Aids in and advocates for the development of home-, school-, and community-based services that willl meet the needs of individuals with FAS/FAE, their families, and associated professionals.

FAS Family Resource Insititute (FAS*FRI*)
Post Office Box 2525, Lynnwood, WA 98036 (1-800-999-3429). Non-profit organization that advocates for individuals with FAS/FAE and their families; offers training for parents and professionals, organizes support groups, makes referrals, provides wrriten materials, and publishes the newsletter FAS Times.

Federation of Families for Children's Mental Health (FFCMH)
1021 Prince Street, Alexandria, VA 22314 (703-684-7710; Internet Web site: http://www.ffcmh.org). Puts callers in touch with local offices that assist in locating community resources for emotional, behavioral, or mental disorders.

Fetal Alchohol and Drug Unit (FADU)
University of Washington, 180 Nickerson Street, Suite 309, Seattle, WA 98109 (206-543-7155). Conducts research, offers clinical service, and disseminates information on FAS/FAE.

Fetal Alcohol Education Program (FAEP)
Boston University, School of Medicine, 1975 Main Street, Concord, MA 01742 (508-369-7713). Provides training and individual consultation to health care professionals, parents, and educators; develops and distributes teaching packages, articles, books, and brochures.

Fetal Alcohol Information Service (FASIS)
Post Office Box 95597, Seattle, WA 98145-2597. Nonprofit organization that publishes newsletter ICEBERG and provides reprints (write for a sample copy).

Healthy Mothers, Healthy Babies (HMHB)
National Headquaters, 409 12th Street, SW, Washington, DC 20024 (202-863-2458). Promotes public awareness and education about prenatal health, develops networks for sharing information, and distributes public and professional education materials.

March of Dimes Birth Defects Foundation (MOD)
National Headquarters, 1275 Mamaroneck Avenue, White Plains, NY 10605 (1-888-MO-DIMES [1-888-663-4637]). National, nonprofit organization dedicated to healthier babies through prevention of birth defects; provides financial support and conducts programs of research, education, and community services; also offers award-winning video and interactive teachers' guide, The Fabulous FAS Quiz Show, that targets middle school students. (Available by calling 206-624-1373).

National Alliance for the Mentally Ill (NAMI)
200 North Glebe Road, Suite 1015, Arlington, VA 22203-3754 (703-524-7600). Nonprofit, self-help, support, and advocacy organization of families and friends of people with brain disorders. Provides education and supports increased funding for research.

National Association for Family and Addiction Research and Education (NAFARE)
200 North Michigan Avenue, Suite 300, Chicago, IL 60601 (312-541-1272). Nonprofit organization that develops training programs, curricula, articles, and brochures on prenatal substance abuse.

National Association of Protection and Advocacy Systems (NAPAS)
900 2nd Street, NE, Suite 211, Washington, DC 20002 (call for the local state chapter). Federally mandated organization that works to protect the rights of people with disabilities, including mental illness. Handles discrimination, neglect, and abuse issues. Provides information, referrals, and resource materials.

National Organization of Social Security Claimants’ Representatives (NOSSCR)
6 Prospect Street, Midland Park, NJ 07432 (1-800-431-2804). Association of more than 3,000 attorneys and paralegals who represent Social Security and Supplemental Security Income claimants; provides quality representation and advocates for beneficial changes in the disability determination and adjudication process.

National Organization on Fetal Alchol Syndrome (NOFAS)
1819 H Street, NW, Suite 750, Washington, DC 20006 (1-800-66-NOFAS [1-800-666-6327]). Nonprofit organization that works to raise public awareness, implement startegies for prevention and intervention, and influence public policy decisions on FAS/FAE; also provides informative literature regarding FAS.

North American Council on Adoptable Children (NACAC)
970 Raymond Avenue, Suite 106, St. Paul, MN 55114 (612-644-3036). National, nonprofit organization that provides education, outreach, and research information; holds annual conference and offers resource list of parent support groups.

P.A.R.E.N.T.S.
540 West International Airport Road, Suite 200, Anchorage, AK 99518 (907-563-2246; in Alaska, call 1-800-770-5437). Parent information organization that empowers Alaskan families who experience disabilities by providing resources, training, and support statewide. Educational packets are sent nationally. Packets that deal specifically with FAS are available for parents, educators, and the legal community.

Parents Are Vital in Education (PAVE)
6316 South 12th Street, Tacoma, WA 98465 (206-565-2266). Private, nonprofit organization that informs parents of children with special needs of their legal rights to education and services; also provides workshops and informational packets.

Project II/GOARC (GOARC)
3610 Dodge Street, Suite 101, Omaha, NE 68131 (402-346-5220). Member agency of the United Way of the Midlands. Provides brochure detailing what people with developmental disabilities should say if picked up by the police.

Public Interest Law Center of Philadelphia (PILCOP)
125 South 9th Street, Suite 700, Philadelphia, PA 19107 (215-627-7100). National advisory group for justice for people with developmental disabilities. (For addtional assistance in legal matters, contact your local County Public Defender's Office.)

Society of Counsel Representing Accused Persons (SCRAP)
1401 East Jefferson, Suite 200, Seattle, WA 98122 (1-800-275-1445). King County Public Defender's Office. Local organization that provides legal advice, suggestions, and support nationwide for people criminally accused and their families.

Society of Special Needs Adoptive Parents (SNAP)
United Kingdom Building, Suite 150, 409 Granville Street, Vancouver, British Columbia, Canada V3T 3E3 (604-687-3114). Nonprofit organization that offers supprt, education, information, and advocacy for families of children with special needs; also distributes newsletter and runs a resource library.

Parent Support Groups

Alaska

Anchorage Parent Education Group, contact Carolyn (907) 694-6644 or Cheri (907) 277-3710.

Canada

FAS/FAE Information Service, Canadian Centre on Substance Abuse in Ottawa, Ontario. Contact Carole Julian ((800) 559-4514 in Canada; (613) 235-4048 outside of Canada.

Peer Support Group for Women Parenting Children with FAS/FAE, contact YWCA Crabtree Corner (604) 689-2808 in Vancouver, British Columbia.

Support Group for Caregivers of Individuals with FAS/FAE, contact Jan Lutke (604) 589-1854 in Surrey, British Columbia.

Yellowknife, Northwest Territories, contact Helen White (403) 873-5785.

California

Contact Liz Zemke, PHN, MS (209) 432-6035 or FAX (209) 432-8942.

Contact Lynn Bilke (619) 589-1257 or Karen Aquiree (619) 430-8170.

Colorado

Fetal Alcohol and Substance Abuse Coalition, Contact Karen Riley (303) 764-8361.

Illinois

Contact Kelly King-Shaw (309) 691-3800 or Colleen Matarelli (309) 682-2024.

Indiana

Contact Lisa Smith (765) 737-6430.

Iowa

FAS/FAE Prime Time Two Support Group, contact Leslie Schmalzried (515) 961-8830 in Indianola.

Kentucky

FAS Support Group, contact Easter Seals (606) 491-1171.

Michigan

Catholic Human Services, contact Martie Manty, M.A., CSW (616) 947-8110 in Traverse City.

Parents Supporting Parents, contact Barbara Wybrecht (313) 662-7231, Betsy Soden (313) 662-2906 in Ann Arbor, or Pam O'Briant (810) 736-8099 in Flint.

Minnesota

Thunderspirit Lodge Support Group, contact Joyce Glass (612) 290-9920.

Missouri

The Family Information Network, contact Peggy Oba (816) 361-7589 in Kansas City, or Jenni Lloyd (314) 993-4882 or Pat Krippner (314) 962-6397 in St. Louis.

Nevada

Contact Cindy Kuhn (702) 459-4303.

New Jersey

Support Network for Adoptive and Foster Parents, contact Ronnie Jacobs (201) 261-2183 in Paramus.

Ohio

Columbus Central Area FAS/FAE Support Group, contact Phil Petrosky (614) 755-4803 or Marge Schaim (513) 931-2116.

Pennsylvania

FAS Parents and Caregivers Support Group, contact Diane (717) 769-6092 or JoAnne (717) 769-6289 in Woolrich.

Texas

Contact Sandy Shidler at The Arc (214) 317-1206 in Dallas.

Virginia

FAS/FAE Kid Connection, contact Mary Ann Lee (804) 520-2201 in Chester.

Washington

Eastern Washington Biological Mothers Support Group, contact Kathy Dunham (509) 337-6911 or (509) 522-0622.

Eastern Washington Fetal Alcohol Support Group, contact Janet Vernon (509) 684-3772.

Tri-Cities Support Group, contact Kathy Dodson (509) 545-2207, Karen Reep (509) 627-6104, or the Neurological Center (509) 943-8455.

Southwest Washington, contact Joanne Roberts (360) 896-6147 or (360) 696-8444 in Vancouver.

Snohomish County FAS Parent Support Group, contact Jocie DeVries (206) 775-9598.

Contact Marceil Ten Eyck (206) 827-1773 in Bellevue; Vickie McKinney (206) 531-2878 in Tacoma; Dorthy Beckwith (509) 663-3793 in Chelan/Douglas County; or Nina Burks (206) 842-5129 on Bainbridge Island.

West Virginia

Contact Florence Kanter (304) 452-8862.

Wisconsin

National Family Empowerment Network, contact Moira Chamberlain (800) 462-5254 in Madison.